The lovely lymph nurse....

I suspected that the pain in my arm and trunk was more than normal mastectomy site mending itself pain and my oncologist referred me to a Lymphedema Nurse called Vikki. I felt a bit strange about going for this appointment because I was dreading the possible prospect of having to wear a compression sleeve and also the nurse is based in our local hospice. I have too say I was pleasantly surprised, the hospice was so calm and blissful a huge manor house converted, very friendly offering you tea and coffee in a comfortable waiting area with big armchairs, I don't really know what I was expecting to find but it certainly was not something as comforting as it proved to be and I no longer have 'the fear' as regards to a hospice.

As for lymphedema I do have it but very mild and early stages which is mainly in my trunk on the side, the pains I was experiencing turned out to be nothing to do with lymphedema but everything to do with my nerves knitting themselves back together (its been a year since my mastectomy). Vikki measured both of my arms and told me that my right arm (which is the affected limb) is 2% larger than my left, although my right arm is my dominant arm anyway so it would always be slightly larger, needless to say I am hugely relieved that all the exercises are paying off and keeping the dam lymphedema at bay.  We had a great chat and I found her to be so sympathetic and understanding.

During the consultation she said would I like to be referred to a Bowen Technique practitioner, I have heard of this complementary treatment and wanted to try it out anyway so was pleased to find that its free of charge on the NHS if your referred by your lymph nurse and a series of appointments have been made. My first appointment was on Friday and was very interesting, a series of light touch movements all over my body and it really did seem to work wonders, aligning and correcting my spine whilst attempting to deal with my side effects ie: migraines/hot flushes/neck and back pain. I will keep you all posted on how I progress with these treatments but I already feel something inside me has clicked and am looking forward to my next session which will be next week.

Lymphedema? and the great flood......

Wow another one of those days!! Got bitten on my leg by a horseflie thought to myself I'll go to dr on Monday, then whilst enjoying a brief respite from the pouring rain (I live next village from Yealmpton on national news as it flooded) another of the nasty buggers bitten me this time on my right arm by wrist I've had all the lymph nodes out in that arm and distinctly remember my BCN (breast cancer nurse) saying "not to cause any trauma on that side or it could turn into Lymphedema (see below description) " so was worried sick I ended up phoning the NHS help line and they put me onto a very nice Dr who phoned me back and wrote out a prescription for antihistamines and antibiotics, so now drugged up to the eyeballs on the stuff, it never rains and then it pours excuse the pun!!!!

If any readers have had their lymph nodes out and don't understand the implications of this here's a description of what Lymphedema is. One of the most common causes of lymphedema is removal of the breast (mastectomy) and underarm lymph tissue for breast cancer. This causes lymphedema of the arm in 10 - 15% of patients, because the lymphatic drainage of the arm passes through the armpit (axilla). The main symptom is persistent swelling of the affected limb also note there is no tablet or drug to take that will relieve this symptom and once you have developed it, it can be very hard to reverse the process, the only thing you can do is wear a compression sleeve and of course exercise can manually move the fluid along so it always helps to do the exercises the BCN gave you whilst in recovery from the mastectomy.

On a lighter not I've been busy baking my first loaf of bread today in borrowed breadmaking machine, tasted delicious and I love the fact I know what's in it also baked a sticky toffee pudding smells yummy, sending you all my love and a cyber slice of the sticky toffee xxxxx