Showing posts with label lymph nurse. Show all posts
Showing posts with label lymph nurse. Show all posts

Wednesday, 8 May 2013

Back for a bit....

Hello all,
Well I'm back from the terrifically sunny and absolutely gorgeous Newquay it was truly great just too get away although I did miss the cats terribly. Plenty of walks and talks with my friend sandy we also managed to visit the Japanese Garden just outside of Newquay which is magical especially at this time of year, I took a heap load of photo's and ate far too much but what the hell I figured I deserved a break. Taught my friend Sandy to paint with Acrylics which pleased her and me enormously also did a couple of paintings myself. My partner Lee got on and has started the conversion so we will be going back over in a fortnights time for another week and so it goes on until its finished.

MRI results came through whilst I was away in Newquay and the doc's say I'm cancer free on the brain   so big massive sigh of relief and something to celebrate for a change. Hospital appointments are sort of dying down I've got a routine heart scan on the 31st of May and a lymph nurse appointment other than that I don't have to go to the dreaded oncology department for 3 months!!! first time in 2 years, so hallelujah to that. Although I have a slight nagging fear going on in the back of my head which is only alleviated by having regular scans, the doc's said I'd been stable for long enough for them to give my body a radiation scan break.

Other news is I'm still steadily putting on the bloody weight very annoying, this has been getting too me I try not to let it piss me off but I've spent my whole life as a skinny size 8 and now I'm trying on clothes that are a fucking size 16!!!! bloody tamoxifen!!!! When I say gets to me I mean I get really depressed and dive into the fridge I figure I may as well go with it even when I'm just having juice and nothing else I put on weight I may as well eat what the hell I like and be done with it. The worst part is not being able to fit into any of my clothes also I've taken all the mirrors down I can't stand looking at myself anymore because the person staring back at me quite simply is not the Sarah I knew before all of this shit started, its so depressing, god knows what my boyfriend thinks!

Hope you are all doing well and sending everyone some love and light
Sarah xxx

Sunday, 23 September 2012

Bowen Technique

The latest complementary treatment I have been trying out is called the Bowen Technique, my lymph nurse referred me to a lovely lady called Val and so far I have had two sessions with her at the local hospice where she is based. I have been suffering with constipation probably as a direct result of all the drugs I am on after telling Val about this she tailored her treatment taking this into consideration and after the treatment was finished and later in the day lets just say the problem was resolved, I feel it was the Bowen that helped. Here's a link if your interested http://www.bowen-technique.co.uk/.

I have my yearly appointment with my breast surgeon on Thursday he may offer me a reconstruction I have discussed this with family and friends, but I'm still not sure whether or not to go down the road of more surgery, will keep you all informed how this goes.
Love and light to all xxxxx

Saturday, 15 September 2012

The lovely lymph nurse....

I suspected that the pain in my arm and trunk was more than normal mastectomy site mending itself pain and my oncologist referred me to a Lymphedema Nurse called Vikki. I felt a bit strange about going for this appointment because I was dreading the possible prospect of having to wear a compression sleeve and also the nurse is based in our local hospice. I have too say I was pleasantly surprised, the hospice was so calm and blissful a huge manor house converted, very friendly offering you tea and coffee in a comfortable waiting area with big armchairs, I don't really know what I was expecting to find but it certainly was not something as comforting as it proved to be and I no longer have 'the fear' as regards to a hospice.

As for lymphedema I do have it but very mild and early stages which is mainly in my trunk on the side, the pains I was experiencing turned out to be nothing to do with lymphedema but everything to do with my nerves knitting themselves back together (its been a year since my mastectomy). Vikki measured both of my arms and told me that my right arm (which is the affected limb) is 2% larger than my left, although my right arm is my dominant arm anyway so it would always be slightly larger, needless to say I am hugely relieved that all the exercises are paying off and keeping the dam lymphedema at bay.  We had a great chat and I found her to be so sympathetic and understanding.

During the consultation she said would I like to be referred to a Bowen Technique practitioner, I have heard of this complementary treatment and wanted to try it out anyway so was pleased to find that its free of charge on the NHS if your referred by your lymph nurse and a series of appointments have been made. My first appointment was on Friday and was very interesting, a series of light touch movements all over my body and it really did seem to work wonders, aligning and correcting my spine whilst attempting to deal with my side effects ie: migraines/hot flushes/neck and back pain. I will keep you all posted on how I progress with these treatments but I already feel something inside me has clicked and am looking forward to my next session which will be next week.