Tuesday 28 June 2016

Tricky Times

Its been ages since I last wrote a post so I thought I'd better bring you all up to date. My father had a stroke earlier on this year and after nearly 8 weeks in hospital he was released, unfortunately they released him way to early, he wasn't ready to come home and the house wasn't ready for a severely disabled person. So after a lot of phone calls and a couple of weeks spent at my mum and dads house we finally have managed to get nursing care for 4 weeks after which they will review and see if he needs any further care. I don't want to go into it on here but its been a nightmare! not just watching my dad struggle around the house with the stairs but also with all the red tape to go through just to get some help. It was made all the worse when my mum went down with flu which she then passed on to dad who already had pneumonia earlier on in the year all this put his recovery back to being bed ridden and so I was asked to come up and care for a fortnight, this I did, but I'm physically not able to lift him etc so was relieved when the nursing care finally was sorted. Worryingly my father was referred to the lung cancer department and was supposed to go for a CT scan earlier on in the year after his bout of pneumonia, due to the stroke this got left by the wayside and forgotten about, however today he faces a CT scan to check out that earlier niggle. Stressed out or what.......

As for me, I'm sort of ok obviously feeling frazzled by all the stuff going on with my dad but also other things are upsetting me involving so called friends and loyalty. Again I don't want to go into it but am feeling very low, initially I was disappointed but now I'm just plain angry, this will pass, I am used to these feelings but a trust has been lost and I don't think I can forgive and forget this time, I feel this is the end for one significant friendship as I just cant see a way around the problem other than conceding defeat and carrying on as if nothing has happened, the later of which is totally out of the question and is something I have done ie: bury head in the sand over and over again. Enough is enough...... I am sad but also glad to of been shown the lies that have been told allowing truth to prevail.

Health wise I am doing alright although I've had a few heart palpitations and feel my stomach swells up at certain times of the month, not sure what is going on there but my skin around my abdomen becomes very tight and I feel about 9 months pregnant even though I know I've put on weight its not anything to do with weight it feels like water retention the sort you get before a period so I suppose I will have to go back to the Dr's to find out what the hell is going on. Have too say I am so sick and tired of all this shit..... Dr's, hospitals, appointments, ailments and symptoms urghhhhh.............. Wish it would just all fuck off. At times I have considered just stopping everything, no more Zoladex no more Herceptin, just see what happens, at some point in the future I am going to come off these drugs, people have been on them for 10 or 15 years but I did read somewhere that in America some life time patients have been weaned off Herceptin and found no repercussion from it. When someone tells you that you've got to be on it for life its so hard to know how your going to feel about that only time will tell. Its been 5 years 6 months since this all started thats a long time dealing with something on a daily basis, living in fear of the dreaded 3 monthly CT scan results and going to the hospital every 3 weeks to have a potentially life saving drug. Apologies this isn't very positive is it but its how I feel at the moment and thats on Citrolapram anti-depressant maybe they need to up the dosage as the hot flushes are off the scale (not kidding sweat pouring down my face) and my moods are at an all time low!!!