Monday 9 September 2013

Latest news on Tamoxifen.....

I keep getting weird coincidence the latest one is related to the bane of my life Tamoxifen. Some of you may remember that I suffer with severe side effects taking this drug I've been on it since Oct 2011 and am supposed to be on it for 5 years. Recently due to the hideous side effects I have been considering stopping taking this drug and figured that I'd been on it for 2 years and couldn't take anymore of its bullshit!!! However 2 media releases have come to my attention one is on the radio here's the link http://www.bbc.co.uk/programmes/b039d4b6 its right at the beginning of the programme and only lasts for 15 mins well worth a listen, basically they talk about the lack of support offered to women who are considering stopping the drug, why women want to stop taking the drug, and its associated side effects. The other was on Sky and my spiritual healer saw the programme and relayed the information to me. It would seem that there is a 2 year itch with this drug where the side effects if suffered from are so severe women are not taking it and sadly dying as a result. Obviously there needs to be some form of follow up support for women taking this drug as its completely understandable why women choose to stop taking it because the side effects can be extreme. Side effects range from severe weight gain (I've put on 4 stone in 2 years for the first time in my life and have gone from a size 8 - 18 overnight!!! I don't eat anything really different so its not food related apart from the fact that I don't eat wheat, dairy, or red meat), chronic migraines at least 3 a week this is so debilitating I have too spend the day on strong pain killers and in a dark room in bed, arthritic pain in both ankles and wrists/hands so bad that on occasion I can't walk, hot flushes I literally pour with sweat and go bright red in the face this makes me not want to go out so exasperating a lack of confidence and trust in my own body and its functions apart from the fact it makes me feel so ill. Not everyone taking the drug will suffer with these side effects but those of us who do its absolute hell. One of the best suggestions on the Radio 4 programme was for a 3 month drug holiday, my own Onc. suggested a one week break to which I replied that its not worth it and not long enough she certainly made it quite clear that I should not stop taking it and that she in no way would agree with me doing this. I put it too her that my oestrogen count was only 4/8 and not 8/8 (so my cancer is fed weakly by oestrogen) she told me that that only means that I will die a bit later than someone who is 8/8!!!!! meaning it wouldn't get me as fast as if I was 8/8. ughhhhhhhhhhh I also put it too her that the dammed Tamoxifen is making me put on so much weight and that obese women are in the high risk category so surely the one thing is cancelling out the other, she told me that news reports about obese women being in a high risk category was nonsense!!!!! ughhhhhhhhh it would seem I am stuck on this fucking drug for the time being or until I literally can't take anymore and go do dally on the blasted stuff. Its sending me round the bend already and I honestly don't know what to do about it, I feel at the end of my tether. Anyone reading this who has some answers please share and email me. Thanks xx

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