Secondary Breast Cancer - After care

Hello to those that follow me or to anyone thats interested. This blog post is on a subject that is extremely important to me and anyone else who is currently dealing with secondary breast cancer dx. Its about after care, so far my team at the hospital have been amazing BUT I still don't have a dedicated Breast Cancer Nurse who specialises in a secondary dx. The general Breast Care Nurse only works on a Wednesday and Friday.

This disease as we all know affects all of us differently with 10 sub-groups and various levels to those groups, I think we would all agree that a new approach is needed if we are to move forward with our lives and living with such a dx. The disease affects everyone so differently and what might work for one doesn't necessarily work for another. Fundamentally we need help, specialised help from a dedicated secondary nurse who is at the other end of the phone (not just on a Wednesday and Friday). At the moment we have the wonderful Breast Cancer Care Charity who have a hot line to ring if you need it and I do ring it, to discuss all sorts of problems from treatments to side effects as well as personal emotional issues, but it would be a lot better if I had someone I had grown to trust and know, who understands me and my dx, who can offer real educated advice on all sorts of matters not just medical but also on an emotional level.

Here's al link to Breast Cancer Cares campaign 'Secondary, not Second Rate' https://www.breastcancercare.org.uk/sites/default/files/secondary-nursing-report.pdf this outlines my feelings on this subject and offers an insight into how we can help others live there lives with care and compassion.