Results update........

So after many phone calls, and discussions with the herceptin nurse I finally 12 weeks later get my results of the latest CT scan phew.......... its ok all is the same as before stable. It was my lovely herceptin nurse that actually pushed hard at the hospital and phoned me with results, something she shouldn't have to do, but she did, above and beyond the call of duty, bless her. What would I have done without her?

Not feeling like chatting much at the moment can't be depressed because I'm on anti-depressants! but certainly feel a bit depressed, crazy shit!

I've got a few more appointments, follow up check up, and a echo scan then thats it for the year.

Just want to get this year over and done with, its been a bugger of a year in more ways than one, many things happening that are utter shit, need a fresh start and a new year.

So I'm gonna sign off this year and say Happy Xmas and a Happy New Year to you all, speak to you next year with a more up beat me.

RIP Dr Stephen Kelly

It is with a heavy heart that I can now report that my consultant Dr Stephen Kelly passed away last week. I found out by chance as I phoned his secretary to ask why I hadn't received a letter telling me when to come in for my CT scan results, it's been 8 weeks! This has happened before so I didn't think much of it and presumed my results were probably OK, but the real reason is because Dr Kelly had passed away and thrown the whole of oncology into turmoil. There were rumours and whispers of liver cancer but I thought he'd beaten it, apparently he had not. It doesn't seem right that someone devoted to treating patients of cancer should fall foul of the very same thing. I am in total shock and feel floored by this sad news. Now more than ever I need to move my care to a new hospital with a new Consultant. The other Dr's at my hospital do not inspire any great confidence and I've not really had very good experiences with them. Dr Kelly was by far the best if not at the hospital then defiantly in my area.

Absolutely gutted.

Red spot trauma....

Feeling chronically fatigued again...... got my thyroid test tomorrow morning thank god, need some answers on this point. Tummy is swollen as well as fat I kid you not I look about 8 months pregnant, so walking or waddling is not great which only adds to the fatigue.

To top it all off I've got a spot.... on my mastectomy scar..... red lump spot thingy WTF is it? Now panicking about it but I've a mamo on Wednesday so will mention it to the nurse and might get a doc to take a quick peek at it, I'm praying its a insect bite but........ you never know with this shit.........
Its because its on my scar that it makes me think the worst, this is what its like every ache, pain, lump bump there is always a worry?

Feeling very lethargic don't want to do anything so going to lie down and rest.

UPDATE

Red spot gone was only a normal spot phew........... I did mention it to the nurse at the mamo and she just said to keep an eye on it......uh yeah!!! like I'm not gonna do that.... talk about state the bleedin obvious!

Also had the Thyroid blood test and not heard anything so I presume all is normal....back to the drawing board.

and finally still haven't heard my results about my CT scan I had back on the 12th of September nearly 8 weeks ago Wow a record breaking amount of time to wait to find out if my cancer has spread.

The month where if anybody says the P word to me I'll scream

Yes its that time of year again the air is cooler (thank god my hot flushes are off the scale!), the nights are drawing in, the leaves are falling all of these things I love but what I don't like is the bloody way people now call October Pinktober or words to that effect.... it makes my blood boil! Good natured well meaning people are duped into buying a product because it has the breast cancer logo splashed all over it and coloured it pink, what these good people don't realise is only a tiny amount of the money taken for the product actually goes to the breast cancer charity, hardly anything at all, certainly not enough to make a massive difference it just means that every October these companies get extra exposure under the cover of charity. Its a massive marketing campaign and yet again is clouded by money.

Back to the reality of living with secondary breast cancer, last week I had my flu jab (as I am immune compromised) which made me feel terrible I spent the whole week in bed, feeling very sick, achey (more than the usual) and plagued by migraines......the bain of my life. Today I awoke to the sinking feeling where I feel sick to the pit of my stomach and then the head throbs back on the sumatriptan and knock out drops....... just woke up and the whole flipping day has gone again.

Saw my GP last week and am to have another blood test for the thyroid so onwards and upwards, will keep you all informed if it does work out to be the thyroid gland.

Still feeling hot hot hot! but my lovely GP has upped the anti-depressants to 20mg a day so that should start taking effect shortly on the flushes that are the second bain of my life.

Best get on with whatever I have left of today.